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Lifelong Care for Children with Chronic Conditions: A discussion series - Shared screen with speaker view
Sita Strother
28:29
Welcome everyone! Feel free to introduce yourself in the chat and add your questions as they arise.
Ephraim Senkyire
29:34
Ephraim, RN . Ghana
MARCIO FOSSARI
30:17
Fossari, MAS. Brazil.
Appu George
30:37
Appu K George, Kerala , India , An adult CHD
Jackie Boucher
30:53
Jackie Boucher, Children's HeartLink, USA
purushothaman kk
31:18
puruhothaman pediatrician, kerala india
Troy Jacobs
31:23
Troy Jacobs, USAID/Washington, Research & Policy, pediatrician
Veera Rajasekhar
31:47
Veera , Children's HeartLink
San San Nu
32:03
Good evening to all.
Janaki Menon
33:32
Janaki Menon, Pediatrician, Thrissur, Kerala, India
Dyness Kasungami
33:59
Welcome everyone and thank you for participating today. I am Dyness Kasungami from JSI the host for the Task Force Secretariat. Looking forward to your continued involvement in the Task Force. I hope you signed up to join the network when you registered for the webinar. Let us know how we might meet your needs to strengthen child health and development programming in your context.
Parvathi Mohan
34:47
Parvathi Mohan Paediatrician, Kerala -India
Peter Waiswa
40:55
Thank you very much for the great work.My Name is Rtn Moses Kyangwa. Am a public Health Scientist , Chief Executive Officer of BusogaHealth Forum in Uganda. The Busoga Health Forum (BHF) is an independent voice for health professionals linked to Busoga .The membership includes a multidisciplinary mix of medical professionals, public health specialists as well as other health related and non-clinical practitioners.BHF advocates for the improvement and maintenance of personal and community health through the development of community centred interventions and policy briefs based evidence that is generated in the region and country on best practices.BHF is therefore a think tank, generating evidence to drive health policy action to improve the health and development of individuals in Busoga and beyond.Vision:People in Busoga living healthier, productive and more fulfilled livesMission: To bring together the forces of Busoga health professionals on an open and inclusive platform as a focal point to mainta
Peter Waiswa
41:36
Looking forward for more engagement
Vivian De Leon
42:24
may e hav a copy of the lecture
Sita Strother
43:47
There will be a recording of this session and full presentation shared later today with all who registered and posted on the Child Health Task Force website: www.childhealthtaskforce.org
Cara Endykedoran
54:52
Welcome everyone. Please feel free to write your questions in the chat.
Dyness Kasungami
58:45
@ Rtn Kyangwa and Peter Waiswa; thank you for sharing about your organization, looking forward to collaborating with you.
Appu George
01:06:28
To Sreehari Sir, Any programs for adult children with CHD??
Peter Waiswa
01:11:36
Do you have any mentorship program for health workers managing children in health facilities in Africa
Janaki Menon
01:12:53
The concept of transition clinics needs to be integrated into our health care system.
Marsha Elixson
01:13:32
Great discussion. So pertinent to all. Thank you.
Parvathi Mohan
01:15:41
Childrens Heart link and Dr Sreehari have been doing a wonderful job.Hridyam has been a very successful programme.
Anima Sharma
01:15:41
Hi, isn't transition clinic similar to mobile clinics?
Janaki Menon
01:16:21
What is being planned in Malaysia should also be replicated here...capacity building in the public sector
Sajini J
01:19:39
young adults are already too vulnerable due to their heart condition. They really need a system to survive. please help them
Anima Sharma
01:20:39
Thanks, indeed useful.
Cara Endykedoran
01:21:56
Any reflections on what this means for national governments and implementing partners working on strengthening PHC or HSS?
Sajini J
01:25:58
the budget allocation to heath care is just 2 to 3 percentage.. please can WHO have a ruling made mandatory that a certain percentage has to be allocated to health care depending of whether the country is developing or under development. Cz its a fact that its not that the country doesn't have the money but its not tapped the right way and the common man pays the price
Rory Nefdt UNICEF NYHQs
01:26:13
Would be important to advocate for inclusion of NCDs, chronic care in LMICs in UHC and PHC initiatives, e.g. GAP PHC accelerator - including inclusion in national health sector plans, policies and ultimately integrated budgets etc
Marsha Elixson
01:28:16
ACHD has a patient passbook that is very helpful in transitioning to Adult CHD
Sajini J
01:29:22
yes .its about commitment.
Bistra Zheleva
01:33:12
https://iqic.chboston.org/
Bistra Zheleva
01:34:00
https://www.heartuniversity.org/ - it requires a registration but it is free to access
Nande Putta
01:34:25
To the point Sreehari made about there being very low case numbers as a challenge; that is part of the rationale for UNICEF’s approach to chronic lifelong care that bundles chronic conditions and looks at critical health system inputs to integrate some elements of care at Primary Health Care level. An integrated approach would seem a more cost-efficient and practical way to achieve this.
MARCIO FOSSARI
01:34:44
Thank You Zheleva
Nande Putta
01:39:04
Great webinar, thank you All!
Sajini J
01:39:21
thank u so much for this wonderful session. thanks to all.the organizers and those who are doing so much helping those in need. God bless us all
ALIMATA COULIBALY
01:39:24
Thank you
Maureen Momanyi
01:39:32
Excellent webinar and experiences!
Bistra Zheleva
01:39:49
thank you so much for the opportunity to speak about this topic. integration of services is key in a low-resource setting.
Janaki Menon
01:39:50
Thankyou very much for all the thoughtful and considered reflections
Eden Ahmed Mdluli
01:39:52
Thank you! Will recording be available in a few days?
Dyness Kasungami
01:40:09
Excellent presentations and discussion!
Sita Strother
01:40:40
@Eden Yes, a recording and the presentation slides will be shared with all who registered and posted on the Task Force website.
Bistra Zheleva
01:40:50
feel free to contact me with questions: bistra@childrensheartlink.org
Appu George
01:41:08
Thank you very much.
Eden Ahmed Mdluli
01:41:15
Thanks so much, Sita! Wonderful learning and reflections.
Rory Nefdt UNICEF NYHQs
01:41:16
Excellent presentations and discussions. Thank you to all. Look forward to the next sessions
Sita Strother
01:41:19
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