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Lifelong Care for Children with Chronic Conditions: A discussion series - Shared screen with speaker view
Dr Mohammad Homayoun Ludin
23:23
Greetings, this is Dr Ludin Sr.Nutrition advisor MSH/ Afghanistan
Sita Strother
25:50
More about the series, recordings and presentations here: https://www.childhealthtaskforce.org/events/2021/05/lifelong-care-children-chronic-conditions-discussion-series
Raoul III Bermejo
26:06
Thank you all for joining us this Friday morning
Raoul III Bermejo
29:45
Please share questions, reflections and comments in the chat box
Dr Mohammad Homayoun Ludin
32:00
Sure, we will share our questions
Dr Mohammad Homayoun Ludin
36:54
Can a HIV+lactating mother breastfeed her baby
Rory Nefdt UNICEF Head Child Community Health
37:52
Any idea of how many CSPs are in Botswana? Do they provide other services, e.g. referral for pneumonia in children?
Lara Vaz
38:05
what kind of disclosure support is provided to caregivers who wish to disclosure to their children (or adolescents)?
Lara Vaz
39:15
what is in place to avoid inadvertent disclosure to family members who may be unaware of the child's HIV+ status?
Ephraim Senkyire
41:08
What support are in place for rape cases infected with HIV. I had an incidence in Ghana
Ephraim Senkyire
50:14
Why antibiotics prophylaxis in SCD
Cara Endyke Doran
56:49
What does scale up of newborn screening for SCD mean for national governments and implementing partners working on strengthening PHC or HSS?
Lara Vaz
57:59
important discussions occurring on improving small and sick newborn care globally - Ghana's leadership is recognized, and the importance of screening and early initiation of care for sickle cell is critical -- thank you for sharing.
Amsalu Zeleke
59:14
What is the NBS program?
Rory Nefdt UNICEF Head Child Community Health
59:21
Any thought about having the Ghana Community-based Health Planning and Services (CHPS) programme to help support SCD in communities, e.g. education, information, family support for families affected by SCD
Graham Ogle
59:42
NBS is newborn screening program
Lara Vaz
01:12:29
what are the recommendations to make sure that pediatric experience of care and support for chronic illness are understood and addressed?
Graham Ogle
01:22:35
a private message requested guidelines requested: https://lifeforachild.org/education/guidelines/
Lara Vaz
01:28:44
this has been a fantastic webinar and I hope we can continue link pediatric chronic conditions to work around Nurturing Frameworks as well.
Bistra Zheleva
01:30:08
Congratulations to the organizations who presented. Excellent work! I wonder what was the patient and family engagement and advocacy was? I am curious to hear from Ghana where they got the government to pay for the SC medication and get newborn screening instituted
Ephraim Senkyire
01:35:38
@vivian what is the level of nurses at the community?
Vivian Paintsil
01:36:29
Mostly community health nurses
Efe Obasohan
01:39:28
multidisciplinary team is very important for chronic conditions and physicians must integrate these for success
Bistra Zheleva
01:41:19
What connections do your patients need for tertiary care and how did you connect your programs with that?
Amsalu Zeleke
01:42:10
Can we access all previous pesentations at the website? I tried to search for but didn't find them
Sita Strother
01:43:02
Yes! We will share the recording and presentation from this webinar over email and it will be posted here: https://www.childhealthtaskforce.org/events/2021/05/lifelong-care-children-chronic-conditions-discussion-series
Amsalu Zeleke
01:43:29
I meant previous presentations
Sita Strother
01:43:38
If you scroll to the bottom of this page there is a tab with the recording and presentations from the last session.
Sita Strother
01:43:59
You can also find presentations from other webinars hosted by the Task Force here: https://www.childhealthtaskforce.org/events
Amsalu Zeleke
01:44:13
Let me try
Amsalu Zeleke
01:45:15
I got them. Thanks
Bistra Zheleva
01:45:40
Thank you!
Sita Strother
01:45:53
Thank you everyone for joining!
Olanike Olutekunbi
01:46:07
Thank you
Amsalu Zeleke
01:46:25
Thank you organizers and panelists!
Flavious Nkubli
01:46:39
Thank you organisers
Amina Issa
01:46:45
thank you all, bye